Had my renal ultrasound yesterday and kidneys and bladder looked good. Cytology results are also back and is also good.
The Rat is starting to get more perky after these two positive results and is cautiously hopeful his cystoscopy scheduled for 31 July will also be good...so was pondering on the way home...as you do...
I specifically asked the question of the Waitemata DHB (in my complaint e.mail in late June as to lack of follow up action following my admission of 1 June for haematuria), whether they would fund a CX bladder test for me.
Their response, (from a DHB that was part of the pilot programme using the CX bladder test), was to send me for cytology, then renal ultrasound and then cystoscopy.
1. Hmmm, does that mean they aren't using the CX Bladder test at all as I would have thought a one-off presentation with Haematuria at the Waitemata DHB would have been a classic case for the use of CX Bladder ?
2. When the DHB registrar doctor called me about my compliant I asked again, whether the CX Bladder test was appropriate for my circumstances he said he's never heard of the CX Bladder test...WTF ?
3. As mentioned previously, my doctor also in the Waitemata zone has also never heard of it.
4. I am the accountant for a client who owns a large medical building in the Waitemata DHB area and have got to know one of the senior doctors there quite well so I thought I'd ring him yesterday.
By quite remarkable coincidence he'd had a haematuria himself last year so we have a good open and frank discussion about things. He was aware of the CX Bladder test, (a strong sense of relief flowed over me), but quickly went on too say you can't beat the established treatment methodology that's been prescribed too me, which is exactly the procedure he followed for himself.
If this is how it is in N.Z. in a DHB area that was part of the original pilot programme its difficult to draw any other conclusion that the company has a very steep uphill battle to gain widespread commercial use of this procedure, especially in a volume sufficient to generate considerable commercial success.
Based on the recommendations I've received from a number of health care professionals I'll be following the time honoured and long established method even if it is unpleasant to have a camera on a tube shoved up your dick.
This is not an attempt to dis the test procedure nor am I short PEB. Please DYOR and decide for yourself what weight, if any, to place on this feedback from the coal-face.
Disc, no longer a holder of this stock.